Monthly Archives: June 2011

The Art of Photography Show 2011

In late May, we submitted a subset of Father/Daughter images from Evidence and Artifacts: Facing Autism for consideration to the coordinators of the Art of Photography Show 2011.  We are thrilled to announce that out of the possible 15, 444 entries, 109 pieces were selected by the judge, Anne Lyden and the dyptych, Facing Autism: Chris & Maddie Gauthier was among them. Anne Lyden is an Associate Curator at the J. Paul Getty Museum, Los Angeles and it is an amazing honor to be chosen by her for inclusion in an exhibition.

 The Art of Photography Show 2011 is an international exhibition of photographic art at the elegant Lyceum Theatre Gallery in San Diego’s historic Gaslamp Quarter.  The exhibition will run from August 13 – October 16, 2011.  We hope to attend the Gala Opening Reception, Saturday, August 13th and we extend the invitation to all who are interested and are able to attend.

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2011 Mental Health Symposium: Focus on Autism

This was originally posted 4/17/11 on Odd Ducks Autism. Advocacy. Art.

Evidence and Artifacts: 1 in 110 

On Monday, we left Logan at 5:30 am, and drove to the campus of Utah Valley University in Provo, UT.   We installed 1 in 110 in the main registration and poster area, had a nice little breakfast together in the student center and dropped Maddie and Caleb off at Kids on the Move, a family resource center providing respite care.  Kids on the Move had a super caring staff and lots of great OT toys in a gym-like room, what an awesome place!  The kids had a blast and we enjoyed the break.

Jalynn Prince and Christopher Gauthiér

The day long event featured many valuable presentations.  As parents, we especially resonated with the key note address by JaLynn Prince, Founder and President of Madison House Foundation. Her presentation’s anecdotes made us laugh and cry at the same time – a condition well known to families affected by autism.  JaLynn Prince is a remarkable advocate for adults with autism, a professional photographer and a champion of the Arts as an avenue for charitable activity.  We enjoyed our visit with her and are honored by her interest in Evidence and Artifacts: 1 in 110. 

Dr. Valerie Hu

Dr. Valerie Hu shared extraordinarily hopeful research illustrating the *”need to focus studies on subgroups of individuals with similar symptomatic and behavioral profiles in order to reduce the “noise” in the biological and genetic data that is inherent in this heterogeneous population.”  Rather than rely on my fuzzy understanding of the role of epigenetics in the expression of gene characteristics, I have included this great video of Dr. Hu discussing the implications her research.  It’s fascinating and profoundly important. The research will be published later this month and I will try to post a link when it becomes available. *Description taken from Symposium Program Guide – Obviously 🙂

After her presentation, Dr. Hu asked me to share this link The George Washington Study: Assessing Medication Responsiveness in Persons with Autism Spectrum Disorders (ASD)  She is looking for parent and clinician participation to help focus research efforts.  Please consider participating.  

I also had a delightful conversation with Dr. Lawrence Kaplan, President of US Autism & Asperger Association about the history of biomedical intervention of autism and it’s successes and failures. Truly, we met so many amazingly passionate parents who have focused their energies to become autism advocates and professionals.  It is somewhat healing to see others who have not allowed their fierce determination to be labeled as pathological by a jaded and defensive system.

Attendees

Dr. Daniel Fairbanks
Thank you to all who made this event what it was, most notably Toni Harris, Assistant Dean for Administration and Development, College of Humanities and Social Sciences at Utah Valley University.  We are especially grateful to the participants of Evidence and Artifacts: 1 in 110 — many of whom were at the conference.  You guys rock.  
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Selections from Evidence and Artifacts: 1 in 110 to be Presented at White House Autism Awareness Event

This was originally posted 4/23/11 on  Odd Ducks Autism. Advocacy. Art.
 
 

We are honored to announce that selected images from our current photographic project, Evidence and Artifacts: 1 in 110 will be included in the White House’s event in observance of Autism Awareness Month on Monday. We are both humbled and grateful to be offered the opportunity to present the work and we hope that the images move hearts and minds to make positive changes in our nation’s level of support for people affected by autism.


JaLynn Prince, Founder of The Madison House Foundation will be presenting on the emerging crisis of adults on the autism spectrum who need systems of support for maximum quality of life and independence. Most of the 1 in 110 project thus far has focused on early intervention of young children and has not represented adults of the spectrum. Ms. Prince’s request initiated a quick flurry of phone calls, emails and facebook messages identifying and connecting with new potential adult participants; 16 portrait sittings in 3 days; post-production and a brief but intense crisis with the ftp server. Thanks to friends all over Cache County, especially those at The Center for Persons with Disabilities at USU, and the participants who were willing to respond quickly, we managed it.

Unbelievably, we are able to watch a portion of the event through live streaming.  We don’t know the timing of the presentation that contains portraits from Evidence and Artifacts: 1 in 110, but are hoping to catch a glimpse on Monday, April 25 from 11:30 AM – 12:00 PM Eastern.
 
 
Please use this link for live streaming: http://www.whitehouse.gov/live


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Evidence and Artifacts: Facing Autism

Exhibition at 2011 Mental Health Symposium: Focus on Autism

Our autism chapter of Evidence and Artifacts was flawed from the start.  The change became an obvious necessity when University of Utah researcher,  Dr. Judith Pinbourough-Zimmerman announced that Utah’s autism prevalence is now 1:77 children — 1:49 boys. Since it is our contention that the incidence of autism is truly increasing due to a complex soup of genetic vulnerability and exposure to multiple environmental insults, (as opposed to merely better and earlier diagnosis) we expect to continue to see the numbers rise, making the name erroneous and outdated. To solve this problem Evidence and Artifacts: 1 in 110 has been renamed Evidence and Artifacts: Facing Autism.

If you are interested in participating, please contact us to schedule a sitting.

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